A national study for U.S. Veterans with epilepsy (seizure disorder) to improve self-management of their condition using the online social media platform, PatientsLikeMe.
The overall goal of the study is to improve the self-management practices of U.S. Veterans with epilepsy such as tracking seizures, managing medications and side effects, and engaging with other people with similar concerns about their condition. The specific aims are to evaluate the use of the platform PatientsLikeMe in a population of 200 U.S. Veterans nationally and to measure outcomes using previously validated survey tools, The Epilepsy Self-Management Scale and The Epilepsy Self-Efficacy Scale. This clinical study uses a pre-post study design. Patients are recruited to the online study website where they consent to participation, register up for the PatientsLikeMe platform and complete a baseline study survey. For six weeks patients are encouraged to participate as much as they wish in PatientsLikeMe by tracking their condition, interacting with other members or accessing educational materials. At six weeks patients are invited by email to complete a follow-up survey. Participants may continue to use PatientsLikeMe after the study period.